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There is a readable section related to BAV. Great to hear that youre doing cross country running. This have affected my son psychologically since he loves playing soccer what should I do. I have found your article(s) very useful amongst what I see as so much mis-information out there. They all underwent aortic valve replacement. Frequency of congenitally bicuspid aortic valves in patients 80 years of age undergoing aortic valve replacement for aortic stenosis (with or without aortic regurgitation) and implications for transcatheter aortic valve implantation.Am J Cardiol. 1 year ago I gave up smoking and started endurance running. This was during a 12 week intense training block where my resting heart rate got as low as 42 bpm. My daughter (16 y/o) has a St Jude mechanical mitral valve (adult size valve even though she has had it for 7 years). lifting a max bench of 150 lbs My cardiologist is not concerned. The other theory is that there is a structural problem that leaves the aortic wall weak. My cardiologist has advised that while marathon running is out, shorter runs (up to 6-8 miles) and pilates are both fine for now. 2. In my early 40s I thought that I was getting out of breath more than I should and eventually began to feel weak or nervous during a game, but only on Sunday. "I have heart disease, and I found out about five or four years ago, the singer, now 49, told PEOPLE in 2008. I was hoping that if the ultrasound numbers dont change much, the endurance will not decrease significantly. I am perfectly happy to stick to the 10km max distance for races, but my key concern is that if I do run some faster training sessions then I might have a sudden death. I recently also did a 24hr EKG (holter) which was fine. Normal great vessel size Only restrictions are no weights greater than 100 pounds or heavy contact sports. Is this true that you wont be symptomatic with only mild AR? Hi, my name is Hector and I am 34 years old. The worse the narrowing, the greater will be the difference in blood pressure between the arms and the legs. ODonnell, now 54, said her heart attack began after she helped an enormous woman struggling to get out of her car in a parking lot. His last MRI showed a dilation of 4.4cm at his aorta root but his BAV is fine with very little leakage. Rest pulse (70 bpm|50 bpm) Because it was just a cardiologist, not a sports cardiologist or physiotherapist. In your experience how long are we talking before I have to have surgery and do beta blockers really help in prolonging the need for surgery. But for those WITH such problems, we do recommend curtailing either static or dynamic activities, or both. I take BP medication namely Amlodopine & Ramipril which has lowered my BP. Moderately dilated aortic root (max 46mm), mild ascending aortic dilatation. Interesting situation Sean Miller. I have had scans and echos for as long as I can remember and have never been on medication nor has this condition stopped me from doing anything I have wanted. We have contacted the Cleveland Clinic to learn more and will report back soon. That would include weightlifting. Im a 42 year old male and have been a highly competitive distance runner since high school. There were some procedural differences between the bicuspid and tricuspid groups. The free weights are about 10kg and Im not doing any really heavy weights. Open heart surgery is sometimes the best option, but it is not always the only option. Without careful study, I dont know what the true risks will be. Aortic valve regurgitation: Blood leaks back into your left ventricle instead of only flowing into your aorta. is my lack of top end performance indicative of someone with BAV & aortic coarctation? Then, a Dacron fabric tube can be used to reconstruct the aorta, in a so-called valve-sparing aortic root replacement. I eat relatively well, but sometimes having those pizzas and burgers late at night I had to change that.. Robin Williams - Aortic Valve Replacement & Mitral Valve Repair. Thank you for best websit. Am I crazy? This has caused a Thoracic aortic aneurysm that is 4.3 cm. They dont know they have it [It] leaks blood. I would really like to know if I can (or shouldnt) push myself as hard as I used to. In your experience, can patients with BAV go a lifetime without having AVR? Aortic stenosis and bicuspid aortic valve (BAV) Youre right, though. Thanks for sharing. Celebrities With Heart Disease - Celebrity Heart Health Survivors. Have tried to get a personal trainer that specialises in all things heart related here in the UK but there don`t seem to be any around despite searching. Me, i`m nearly 43, male and have BAV. All aorta is normal, valvula normal funkcion only sinus valsava 35-37mm. Rhm, 43, tragically lost two of her family members to heart issues. Danny. Since Im very active in sports, Id like to have your opinion on it. Stress echo revealed hypercontractile with normal response in all LV segments, no LV cavitary dialiation. My surgeon basically said, Lets get you back to living your life. Cardiologists always say take it easy. Therefore, in the current study, we aimed to compare procedural and 30-day outcomes after TAVI between type 0 and type 1 BAV . TAVR is a relTively new technology where a new heart valve, shrunk onto a catheter, can be threaded through the bloodstream (usually through a leg artery) to where your current valve sits.and then expanded inside the current valve, pushing it aside. . Only your cardiologist and heart surgeon will be in a position to make those considerations. Can you tell me what is to much, are push ups or pull ups heavy lifting, is 3 time per week 5 km running with 10-12 km/h pace to much? Last week I visited a doctor and here are the changes for the last year (before|after): As a result, the valve doesn't function perfectly. This is true at rest and may be even more so during exercise. Is this a normal side effect of the heart condition or not? Sbp. And he never had any symptoms and played competitive soccer since he was 6. It is unclear however if there are cardio thoracic surgeons who perform minimally evasive repairs yet. Hes a 30-year-old 8th grade science teacher, a cyclist and outdoorsman, who is chronicling his story with BAVfrom diagnosis, to evaluation, to preparations for upcoming valve replacement surgery. They may also disrupt the normal flow of blood through the heart. He had a mild BAV and was told that he can play with no restriction. Celebrities with congenital heart disease Details Published: January 27 2016 . They all cause a small bit of obstruction to blood flow as it leaves the heart. 2020 Update: Arnold Gets An Aortic Valve Re-Replacement! Soccer is his only sport and his passion- he plays on his high school team and a travel team. Bicuspid aortic valve (BAV) disease does not usually cause symptoms. From afar, I dont have much to add. I am a 60 yo female who has been active my whole life. Other heart parameters are very good (no bigger chamber or aorta). I do think that aspects of the martial arts are strength-related. Arnold Schwarzenegger opted against a mechanical valve replacement and chose a tissue valve because he felt a mechanical valve might limit his physical activity and capacity to exercise. Glad to hear that youve found a surgeon and settled on a plan. Click to share on Twitter (Opens in new window), Click to share on Facebook (Opens in new window). And slow enlargement of the aorta is common for patients with BAV. However, my problem is that if I can train at this pace then I can still run but I certainly cant compete! Youve got the right idea, though. Again, this is a topic that is not yet well-researched. She advised us we should start to consider surgery but would follow up with us again in 3 months. This gives a chance for the sternum, which was split during the operation, to heal completely. I have ramped up my walking to 30 minutes, keeping my heart rate under 100 bpm. I will keep you posted. Miley Cyrus - Singer & Actress - Tachycardia. Easy bicycling might work, but I suspect that running wont be workable with that cap. You can contact me on zdenkokosutic@yahoo.com. Their experiences have been variable, and perhaps for a variety of reasons. Do medications like beta-blockers limit any potential harm? EKG and echocardiogram were done showing BAVD. Im 39 also diagnosed with BAV when I was 31. The use of a less invasive transcatheter therapy in this . The singer co-founded the Womens Heart Alliance, which works to raise awareness and funds research to fight womens heart disease. Thats the reason we try to place the largest possible substitute valve in patients who need replacement. To the extent that any operation fixes the stenosis or regurgitation, we might expect better efficiency from the heart. Get on with it. My consultant informed me that, because of my age, I would have a mechanical valve fitted which meant that I would be on warfarin for life and therefor not be able to play football. I have been doing as much research as possible on what are the advantages/disadvantages of each replacement. Im 31 and 1 years ago i found im BAV with modrate AI. Having a congenital heart defect means you are born with a problem with the heart's structure. Barb. Benefits: no blood thinning (with attendant risks) needed. I can imagine it might be difficult to make arrangements when you live in one country and your doctor(s) work in another. In March 2018 he underwent emergency surgery to have this replacement valve replaced. Both are important in deciding if and when operation is needed. Enlargement of the left ventricle can be an indication that the heart suffers from the aortic regurgitation, even if the regurgitation doesnt produce symptoms like shortness of breath. Is it right to declared someone having BAV unfit for the post of a chemist? 2023 Cond Nast. Having a congenital heart defect means you are born with a problem with the hearts structure. But, three heart valve surgeries! Diagnosed at 5 with BAV, checked yearly, and okayed to play soccer. Then, Arnold's pulmonary valve was switched to the aortic position. I would like to get back into it, but obviously I have been having some concerns. It usually consists of three flaps of tissue what are called valve cusps. Baton Rouge, Louisiana 70808. Good to hear that youre doing well. These operations can sometimes enjoy the benefits of each of the operations you mentioned.and avoid done of the down sides. In some cases a particular arrhythmia that is responsible for your feelings of palpitations or light-headedness could be identified.and options for treatment could be presented. Like you, I have been frustrated by the lack of experience and information that the cardiology community has for folks like us, although it is encouraging to read everyones posts here and see that we are not alone. The issues of when, how, what sports are safe, etc. Throughout the years he has played football and basketball. I dont know why this formed as I have had the problem valve replaced many years ago. Could you please give me an insight into what else could be causing these chronic episodes of shortness of breathe, lightheadedness and off-on chest pains. And, of course, its important to monitor over time the function of the prosthetic aortic valve and the size of the aorta. So, my question then is really, what should I look out for? In 2006, Adam founded HeartValveSurgery.com to educate and empower patients. Also, my next appointment is, unfortunately the week after my next marathon (which I will be pacing and not racing). He isnt interested in anything else. The first pic showed the action and comedy legend in a supine position with a thumbs-up, while the next three featured a lovely autumn walk, taking in the sights. So for that first month, we usually advise no driving, lifting, pulling, pushing, reaching, etc. A HR limit of 120 will be tough, I would guess. I wouldnt put you in the position of giving me your opinion in a public in forum but just let me know if based on the following, you think Im crazy or not. Normal pericardium, no pericardia effusion The 72-year-old soap oprea legend started feeling a tightness in her chest in Fall 2018, but waved it off until the end of October, when she had to be rushed to the hospital. My cardiologist Said to not lift heavy weights. For example, are there data that shows what happens to aortic diameters once sports have been stopped? Abstract. If he is a candidate for valve replacement are these sports he could ever return to In the best case scenario? Thank you so much for your clear explanations. Learn more about Baldwin Publishing Inc.editorial policy,privacy policy, ADA compliance andsponsorship policy. For many patients, I recommend no heavy lifting (>10 pounds) for the first month after conventional heart surgery. Can you please shed some light on this is the sport performance supposed to gradually diminish (seems to go to zero for me) before the operation is needed? Bicuspid aortic valve can be found in 1% to 2% of the general population . For athletes who return to sport after AVR and aortic replacement, its important to settle on whats safe with your doctor(s) ahead of time. Could I continue to train and just cut out the blood chokes? I found myself in emergency surgery 12 months ago with 50% leakage, an enlarged heart and an ejection fraction of 30. Save yourself.. What is your opinion about dissection in low/controlled messures? To me, cardiologists are not sports people and air on being absolutely over cautious. Okay to wait? Bicuspid aortic valve (having only two leaflets rather than the normal three) happens in about 1% to 2% of the population and is more common among men. Thank you very much for the answer! I think we should have a choice??? What should i do? Jones' goal with the AHA is to help women "actively put themselves on the track to heart health." I have almost everyday all day shortness of breath which follows with chest pain and discomfort. Rose underwent the procedure last week, and said he would be going home to rest for a couple of weeks before returning in March. Thanks in advance. Use of this site constitutes acceptance of our User Agreement and Privacy Policy and Cookie Statement and Your California Privacy Rights. My sinus of valsalva is at 4.8 and my BAV is functional (discrete regurgitation). Im am in stres ?! My last CT scan in November showed a change from 4.3 (May) to 4.5 (November) however I was only given these results yesterday. I have also spoken with Boston Childrens Hospital who have been very helpful and enlightening. A week after he made the varsity team as a freshman he was told by the doctor he couldnt play. The doctor said it wasnt serious, but that I should keep watch on it every year. In 1997, Schwarzenegger underwent heart valve surgery to correct his heart defect. The flaps are called cusps. I otherwise feel very healthy, other than (I think) normal slowing down that comes with age. my age is 20 right now Thanks, In addition to being patients, there are many celebrities who, like you, parent a child with CHD as well. Thanks. The best source of recommendations about safety of various forms of exercise will come from your doctor(s) who are familiar with all the particulars of your circumstance. It prevents the blood from flowing back from the aorta into the heart when the pumping chamber relaxes. The echo in Jan asc aorta Diam 4.2 cm z-score 6.4. I do think that this condition can weigh heavily on patients minds, though, and in your case perhaps particularly so because of the experience of your mother. He is now 15. Does the (unreplaced) aorta enlarge over time? Normally, your aortic valve has three cusps that regulate blood flow from your heart to your aorta. celebrities including musicians, actors, TV personalities, politicians, entertainers, and sports figures, etc. If untreated, it can lead to blocked blood flow. 2. Schwarzenegger visited USC on April 16, 2007 and saluted the new Cardiovascular Thoracic Institute (CVTI), according to a press release issued by The Keck School Of Medicine at USC. Questions about Bicuspid Aortic Valve!! 2 Such features need to be considered before surgical intervention. Probably a bicuspid aortic valve but there are many other possibilities Reply Sign up to receive an email when I add new content. Hi dr. The Institute is a unique collaboration of cardiothoracic and vascular surgeons, cardiologists, pulmonologists and basic scientists all working together without the boundaries of departments or specialties. I have bav with mild dilation of aorta 39mm. I then played football my last two years of high school as well as playing hockey and throwing shot put for the track team. This might reasonably translate into some measurable improvement related to physical exercise. Four necropsy series5, 6, 8, 20 provide the only basis we have for estimating the incidence of bicuspid aortic valve in the adult population, as diagnosis by auscultation is insufficiently accurate and no relevant echocardiographic study has been published. Bicuspid aortic valve refers to a spectrum of deformed aortic valves with two functional leaflets or cusps which are often unequal in size. Chris Pratt to Marry into the Kennedy Family. I will update you all after his Friday appointment. He has stenosis and moderate regurgitation. And, of course, aortic stenosis can affect ones native aortic valve or a prosthetic valve substitute. By clicking Accept All Cookies, you agree to the storing of cookies on your device to enhance site navigation, analyze site usage, and assist in our marketing efforts. When the aorta is enlarged in the setting of BAV, there are a couple possibilities: the valve needs to be replacedor it doesnt: Valve repair. In short, I consider myself to be a high level athlete. Aortic Stenosis And I took him for check up every year and nothing change and he never had any symptoms. Many athletes with bicuspid aortic valve (BAV) may continue to participate in their sports.provided there are no other problems, either with the aortic valve or nearby aorta. I have also been advised that running intervals at over 80% max heart rate would not be sensible. Ive seen several cardiologist and they are divided in recommendations. I was diagnosed with BAV, with regurgitation, no stenosis, at age 63. The timing is my choice.. Some information about myself: Im 28, 186 cm, 77 kg, max pulse 194, rest 50 bpm, live in Russia. . It makes the heart work harder than it should. Down side: must take blood thinners to prevent blood clots from forming on mechanical valve. There are several variations of this procedure that are applicable in specific situations. Everyones symptoms are different but I felt compelled to share mine. Lastly, Id say that BAV alonewithout leakage or narrowing of the aortic valve, and without enlargement of the nearby aortawould not preclude sports activities of any sort. Im 32 years old and didnt expect at all that my aorta would dilate. She said it could still be 6 months to a year just depending on if there are any more changes to this next echo. Defects can involve the walls or valves of the heart, or they may affect the arteries and veins near the heart. "I feel fantastic and have already been walking the streets of Cleveland enjoying your amazing statues. Problem is, Im getting older (52) now and Im wondering the effect age, and should I be asking for more frequent followups. I was having chest pain and flew to Thailand to see what the issues were and they found I had GERD and Esophagitis. And, if so, how did things go? I have 5 children, so I dont want to drop dead and leave my poor wife with them all to look after on her own. Like I said, peoples experiences are all different. Aortic regurgitation (also called aortic insufficiency), which is a leaky valve. I was shocked. Have completed an excercise stress test and signed off as ok on reaching level 13. Im less certain about how BAV, coarctation, and history of VSD repair might impact ones current top-end performance. Many endurance athletes are able to return to their sports after operation for BAV. Health eCooking is a registered trademark of Baldwin Publishing, Inc. Cook eKitchen is a designated trademark of Baldwin Publishing, Inc. Any duplication or distribution of the information contained herein without the express approval of Baldwin Publishing, Inc. is strictly prohibited. The valve can gradually become harder to open or leakier . So it is very possible to continue athletic activities after surgery. Zdenko . No aneurysm. Hi Dr Creswell, What he did say is there are no signs of stenosis, and my heart looks very strong. I just need to know if these sports are a possibility (im pretty sure football is a no given its contact nature). ps. Moreover, there is a myriad of operations that such patients may have had, each with its on set of considerations. His story is typical. But Bob, you confirm that it does for you; and unfortunately I see same for me although 25 years younger. Hi all, I have read that strength training is beneficial for heart health. I get sporatic tingling in my left hand and footand every so often in my left cheek bone. Anyway, I will continue with running as much as I can, and now I have an excuse for my lousy performance. I have completed two marathons. The mechanical valve conduit replaces the valve with a mechanical valve and the aorta with a Dacron fabric tube. A bicuspid aortic valve is a congenital condition, meaning that people are born with two rather than the normal three cusps on their aortic valve. Finally, many patients are able to return to their sports after successful operation. Onside rations would be needed for hose with Marfans syndrome or other diseases of the aorta. Check out Anthony DiLemmes blog, Anthonys Heart Valve Replacement Saga. The only question I have is in regards to having my children screened. Current guidelines suggest no restrictions on activity for athletes with BAV who have no stenosis/regurgitation and who have a normal sized aorta. The congenital bicuspid aortic valve (BAV) condition is a valvulo-aortopathy with substantial heterogeneity in its clinical expressions, associated disorders, complications, and prognosis. I am a 55 years old male and have BAV. In 1997, Dr. Starnes led a team of three surgeons who replaced the aortic valve in then-actor Arnold Schwarzeneggers heart. Jeff. Did the heart have to work harder to compensate? I think you understand the guidelines correctly. Randyyour situation has many similarities to mine; I would be very interested in sharing experiences. My name became public 25 years ago this week. Hector V. Ive never heard about a mechanical aortic valve becoming loose because of high HR. This is an unfortunate situation for the athlete patient because the consensus guidelines do not yet recommend operation, yet advise against strenuous sports activities. Thanks! I ran a 1/2 marathon 4 months after my surgery and have been since training for the Philly FULL marathon, which is tomorrow. In addition to this public search, we scanned our proprietary research database of over 1 million sources and were unable to find any specific research reports that address your goals. and my valve is working quite well (mild aortic regurgitation). As I mentioned in previous comment my recovery is going great. when I discussed this with my Dr. he reassured me that its not my heart causing it. Now, five months after surgery Im gradually returning to sport with 5km runs and kettlebell routine, push ups and pull ups (still feeling pressure in breast bone) no heavy lifting. Hope to hear back soon. Now, fully healed thanks to two stents in her arteries, Lucci is spreading the word. Im 53. 2. Search Hospitals, Join 375,000+ Patientsat Our Facebook Page Click here, HeartValveSurgery.com 2785 Pacific Coast Hwy, #517 Torrance, CA 90505 Phone: (888) 725-4311, 2023 HeartValveSurgery.com. Any words you have for us would be greatly appreciated. Frankly Im worrying quite a bit about thisand I feel like its causing additional chest pain and shoulder pain. I took it up 7 years ago. Jeffrey Howell didn't know he was born with a bicuspid aortic valve until December 2015. We generally limit weight-lifting (or other sports/exercise that have a high static component) for athlete patients with BAV and mild enlargement of the aorta. Film star, former California governor, and seven time winner of the Mr. Olympia title Arnold Schwarzenegger published positive images to his social media platforms on Friday as he recovered from heart surgery. I am 31 years old and had my BAV repaired at The Cleveland Clinic in 1999 when I was 15. I feel as though Im recovering well and, having no other conditions or comorbidities, rapidly. Based on the information Ive provided, I would greatly appreciate your advice and opinion on the matter. I went through the regiment of meds that are prescribed post AFIB. She says now it is stable and I dont have to see her for 2 years. Is this a possible explanation? Is it possible that the valve will get loose? Thank you so much for your explanations, Im 30 years old with BAV 2 instead of 3 leaflets since birth, doctors recommended me to have Echocardiography test each year and so. I feel like 95% of other people my doc sees are just happy to get back to their normal life which doesnt include pushing their bodies to extreme limits. Sadly, we dont have a crystal ball, though to know what the future holds for any particular individual. When patients have moderate to severe aortic regurgitation, exercise can often be difficult. It will probably take a visit with a surgeon (who has all of the pertinent details) to outline the possibilities for you. She said not until it gets to 5cm. It functions as a one-way valve, opening and closing with each heartbeat, which keeps the blood flowing in the correct direction. There are a lot of variables here, even from the short story youve shared. Bicuspid aortic valve is the most common congenital cardiovascular anomaly, occurring in 1-2% of the population. We just saw them in January. I dont believe this has been well studied. Im not sure I have all the answers from afar. The aortic root is moderately dilated (max 46mm sinus to opposite commissure but you can measure 48off axis). There are many causes of light-headedness and chest discomfort that are not related to the heart. We go back in 3 months for another echo. Use or viewing of any Baldwin Publishing, Inc. article signifies your understanding and agreement to the disclaimer and acceptance of these terms of use. Thank you so much! Yet Im personally aware of a good number of athletes whove returned to endurance sport after operations of various sorts for BAV,presumably after discussion with their doctors. Yes, I am aware of the work by Dr. Dietz. He seen our family doctor that week who confirmed the murmur. transcatheter aortic valve replacement (TAVR), Mick Jagger's Heart Valve Surgery: Top 5 Facts. O'Donell took the aspirin recommended for people who think they are suffering a heart attack just in case, but didnt call 911. This has been true as long as I can remember in all sports I seem to have to put a lot more in to get the same out as others. My cardiologist has advised me to avoid high impact activities such as weight lifting and endurance training. The procedure was performed at the Cleveland Clinic. Sometimes it comes even when not exercising. I am playing basketball I am doing 100m and 200m and swimming . Im not aware of studies explicitly about athletes after Ross procedure for BAV. The readers here would love to hear back from you as you work through this. I wouldnt hesitate to register your concern with your sons doctor about waiting a few weeks. Consensus guidelines suggest that (athlete) patients with BAV and moderate enlargement of the ascending aorta should curtail their strenuous static (eg, weight-lifting) and endurance sporting activities because of the risk of aortic rupture or dissection. That said, the recommendations dont address WHEN that screening should occur. But neither of these procedures are durable for the long-term. Im 33 and I do jiu-jitsu. Aortic root is 4cm and currently waiting for a 6month check up to see how it`s going. Like you mention, one theory is related to the aortic blood flow. Even if its one person I help. Its a lot harder in the UK to see your cardiologist so you cant get the answers quickly. My doctor says i use losartan for decrease my blood presure. I do not feel any of the effect of my condition when I run or workout. Bicuspid aortic valves can accumulate calcium deposits more easily than tricuspid aortic valves.